HER2 Support Group Forums - View Single Post - Ca 27-29?

Chelee · 06-22-2006, 01:34 AM

Hi Astrid, Thanks for copying that info from the web about the markers. Very helpful. At least you are all telling me I am in the normal range. Thank goodness. You said your onc only checks her metastasized patients. That would be me. Thats why I thought it was strange when she told me she didn't check markers? If I have involved lymph nodes...I think it would be important and at least one way to keep a eye on it?

I appreciate your time and trouble to post that for me. I get so much more information here then I could ever imagine down at my cancer center.

Tousled & Cheryl, I wanted to personally thank you both for your replies. Seems everyone here agrees. Makes me feel better. So far it looks as if I am in the normal range & pray I stay there. And yes Tousled..I WON'T let this marker by any means be my sole indicator. I just wanted something since I was at my LAST full cycle of chemo. I read so many people on this board had them done...that it made me wonder why my onc didn't do them? Now I find out she does when she flat out told me she never does them.

I bet I will find out they at least did ONE when I first started..and this one was because I finished. We will see if I ever get to see my oncologist?

Thanks to all...

chelee

06-22-2006, 01:34 AM	#7
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Hi Astrid, Thanks for copying that info from the web about the markers. Very helpful. At least you are all telling me I am in the normal range. Thank goodness. You said your onc only checks her metastasized patients. That would be me. Thats why I thought it was strange when she told me she didn't check markers? If I have involved lymph nodes...I think it would be important and at least one way to keep a eye on it? I appreciate your time and trouble to post that for me. I get so much more information here then I could ever imagine down at my cancer center. Tousled & Cheryl, I wanted to personally thank you both for your replies. Seems everyone here agrees. Makes me feel better. So far it looks as if I am in the normal range & pray I stay there. And yes Tousled..I WON'T let this marker by any means be my sole indicator. I just wanted something since I was at my LAST full cycle of chemo. I read so many people on this board had them done...that it made me wonder why my onc didn't do them? Now I find out she does when she flat out told me she never does them. I bet I will find out they at least did ONE when I first started..and this one was because I finished. We will see if I ever get to see my oncologist? Thanks to all... chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.