HER2 Support Group Forums - View Single Post - Ca 27-29?

Chelee · 06-22-2006, 01:21 AM

Hi Kristen, I am so glad you & the others said I am in the *normal* range. (With all I have been through...that is a nice thing to hear!) At least you said these tests aren't always reliable. That is what my oncologist told me and as you know I can't fully trust my oncologist at this point. I sure want to...but its impossible at this point. But she did say they weren't reliable...but she FOLLOWED UP with at that time... "Thats why I DON'T ever use them".

So see what I mean...she said she doesn't use them...but yet I was sneaky and got a copy from my infusion nurse. So my oncologist DOES do them..but she decided she wouldn't bother to tell me! That was a lie in my opinion! So my thinking is now...if she had THIS one...I bet she has done them all along...so that means she WOULD have a few to compare too? (I hope?)

I haven't gotten to see her yet & let her know I have a copy of this CA 27-29. I am sure she WON'T remember telling me she never does them. But at least I can find out if she has an older one and if this one is better or worse?

I feel so much better now that you guys said I am in a normal range. I realize you can't go by these completely...but at least its something. Thanks for letting me know how this works...as I know what to ask my doctor now when I get to see her.

All I get from her is the feeling she doesn't want to spend any time with me, let alone anyone. She just thinks she is suppose to tell you what your chemo is for the day..and send you on your way. Your NOT to ask questions, or slow her down. I find it MORE then frustrating.

Also thanks for the little tip about "if something doesn't seem right for about two weeks...go get it checked out". Good idea. I think I would HAVE to anyway..because every little things worries you if its out of the norm. You know what I mean...we all understand that far to well.

Thanks again Kristen.

Chelee

06-22-2006, 01:21 AM	#6
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	*Hi Kristen, I am so glad you & the others said I am in the normal* range. (With all I have been through...that is a nice thing to hear!) At least you said these tests aren't always reliable. That is what my oncologist told me and as you know I can't fully trust my oncologist at this point. I sure want to...but its impossible at this point. But she did say they weren't reliable...but she FOLLOWED UP with at that time... "Thats why I DON'T ever use them". So see what I mean...she said she doesn't use them...but yet I was sneaky and got a copy from my infusion nurse. So my oncologist DOES do them..but she decided she wouldn't bother to tell me! That was a lie in my opinion! So my thinking is now...if she had THIS one...I bet she has done them all along...so that means she WOULD have a few to compare too? (I hope?) I haven't gotten to see her yet & let her know I have a copy of this CA 27-29. I am sure she WON'T remember telling me she never does them. But at least I can find out if she has an older one and if this one is better or worse? I feel so much better now that you guys said I am in a normal range. I realize you can't go by these completely...but at least its something. Thanks for letting me know how this works...as I know what to ask my doctor now when I get to see her. All I get from her is the feeling she doesn't want to spend any time with me, let alone anyone. She just thinks she is suppose to tell you what your chemo is for the day..and send you on your way. Your NOT to ask questions, or slow her down. I find it MORE then frustrating. Also thanks for the little tip about "if something doesn't seem right for about two weeks...go get it checked out". Good idea. I think I would HAVE to anyway..because every little things worries you if its out of the norm. You know what I mean...we all understand that far to well. Thanks again Kristen. Chelee** __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.