[Chelee]

Hi Susan, After reading your post...I would think YOU should of heard of this Neumega if anyone ever has. If you have always had a low platelet count...then added chemo to it...you should of been one of the first ones offered Neumega. (I am GLAD I refused it this last time they offered it!)

Your doctors did what I hear is the NORM when platelets are low. They just delay chemo one week. (Even my infusion nurse said that.) Thats when I asked my chemo nurse "Then WHY are they giving me this neumega when NO ONE else has had it?" She said she really didn't know.

What am I...their ginuea pig!! As you know platelets are suppose to run between 150 & 450. So yes...you were LOW for a long time. I am surprised you got through chemo when starting with such low platelets to begin with. You did really good regardless of a few delays.

I think my platelets where around 225 or abouts when I started. But now last Monday they were 32. But we will see what tomorrow brings (Wednesday). I pray they have went up SOME. I have done everything I can at home to help...meaning eating right which I was NOT doing. I have been eating things high in protein...I was told that would help. So I have my fingers crossed.

Thanks a million for your post. It just reassures me that I did the RIGHT thing by refusing another shot of the Neumega. That is nasty stuff. I just don't want a transfusion...but my counts SHOULD be on their way back up by now surely? It will be 10 days as of Wednesday since my last full cycle of chemo which made them drop like that. I ONLY had herceptin this last monday. So I SHOULD be fine. (Knock wood.)

That is so STRANGE that you were NEVER offered Neumega with platelet counts like yours. I have NOT been able to find ONE person that knows about this Neumega? Thats counting this her2 board...one other bc board I visit....and all my chemo buddies at the center. Sure makes a person say "Hummmmmmmmmmmmmmmmmm".

Thanks again.

Chelee