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Chelee · 06-19-2006, 11:01 PM

Bev, I just had to laugh when you said I am burning up the keyboard. I have to admit...I SURE AM. When I click on any of my threads/posts...there far TOO LONG. (Thats due to the frustration I have been through and no place to vent.) Soon...if not already...people on this board will see a thread started by "Chelee" and think to themselves..."Oh no...not one of her posts...forget it...I don't have a week to read a novel." LOL I have to calm down and keep it short. Do everyone...including me a favor.

Your right Bev, I am almost done with chemo. I have ONE LAST weekly infusion of herceptin next week...thats it. YEAH.

Since I went in for my weekly herceptin today they ran a CBC to check my platelet count...and all the others. My platelet count dropped even more. Argh! It went from 85 one week, to 77 the next...now it dropped AGAIN...its NOW at 32. My infusion nurse went and talked to my oncologist about how low it was...and she was told to offer me that Negmega again. (I said no...it has nasty side affects.)

So I asked my infusion nurse isn't it normal for it to be lower since I had my SIXTH chemo only 8 days ago? It has had an accumilative affect as we all know. She said it is pretty normal for it to drop at this point and she really feels it will be back up by next week. But she said she had to offer me the neumega anyway. She just said to be REAL careful...don't do anything where I might cut myself. I said I will sit on the couch and NOT move. lol (I did ask her one question though, "Does this mean I CAN'T continue to practice juggling my knives"?)

So now they want me to come BACK in THIS Wednesday to check my platelet count again. So I am only eating things high in protein hoping that will help...because I didn't eat anything to speak of last week after my full cycle chemo. I was dusted...no appetite.

My wbc, rbc, & hemagolbin was all down today....more then I thought it would be? (No wonder I felt so bad this entire week...its been my worse by far.) I took the Procrit today since my rbc was so low. I declined neulasta...my wbc is low...but not too bad yet. It should go back up on its own in a few days.

So I will behave myself till I go back down wed. and have another CBC. Hopefully all my counts will be back up by then. I know my nurse said they NEVER want your platelet count to go below 20...and I am at 32. So I am getting too close for comfort. But my body won't be getting anymore of that taxotere, carb so it should shoot back up soon. (Knock wood.) It better!

I will go check out this story your mentioned to me. (Ronda's story) I love survivor stories...can't get enough of them.

Thanks Bev. Sorry to all of you that have put up with my LONG drawn out posts. I apologize.

Chelee

06-19-2006, 11:01 PM	#16
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Bev, I just had to laugh when you said I am burning up the keyboard. I have to admit...I SURE AM. When I click on any of my threads/posts...there far TOO LONG. (Thats due to the frustration I have been through and no place to vent.) Soon...if not already...people on this board will see a thread started by "Chelee" and think to themselves..."Oh no...not one of her posts...forget it...I don't have a week to read a novel." LOL I have to calm down and keep it short. Do everyone...including me a favor. Your right Bev, I am almost done with chemo. I have ONE LAST weekly infusion of herceptin next week...thats it. YEAH. Since I went in for my weekly herceptin today they ran a CBC to check my platelet count...and all the others. My platelet count dropped even more. Argh! It went from 85 one week, to 77 the next...now it dropped AGAIN...its NOW at 32. My infusion nurse went and talked to my oncologist about how low it was...and she was told to offer me that Negmega again. (I said no...it has nasty side affects.) So I asked my infusion nurse isn't it normal for it to be lower since I had my SIXTH chemo only 8 days ago? It has had an accumilative affect as we all know. She said it is pretty normal for it to drop at this point and she really feels it will be back up by next week. But she said she had to offer me the neumega anyway. She just said to be REAL careful...don't do anything where I might cut myself. I said I will sit on the couch and NOT move. lol (I did ask her one question though, "Does this mean I CAN'T continue to practice juggling my knives"?) So now they want me to come BACK in THIS Wednesday to check my platelet count again. So I am only eating things high in protein hoping that will help...because I didn't eat anything to speak of last week after my full cycle chemo. I was dusted...no appetite. My wbc, rbc, & hemagolbin was all down today....more then I thought it would be? (No wonder I felt so bad this entire week...its been my worse by far.) I took the Procrit today since my rbc was so low. I declined neulasta...my wbc is low...but not too bad yet. It should go back up on its own in a few days. So I will behave myself till I go back down wed. and have another CBC. Hopefully all my counts will be back up by then. I know my nurse said they NEVER want your platelet count to go below 20...and I am at 32. So I am getting too close for comfort. But my body won't be getting anymore of that taxotere, carb so it should shoot back up soon. (Knock wood.) It better! I will go check out this story your mentioned to me. (Ronda's story) I love survivor stories...can't get enough of them. Thanks Bev. Sorry to all of you that have put up with my LONG drawn out posts. I apologize. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.