HER2 Support Group Forums - View Single Post

Chelee · 06-18-2006, 10:22 PM

Hi Bev, Thats interesting that you mentioned your friend with Hep C that had low blood platelets. I did read on a couple of the Neumega webpages I checked out that it is also used on people with other medical conditions that drive down their platelet count. So if thats true...and this Neumega was so good for a person...you would think they would of used it on your friend.

See..that is what really worries me...I can't find ANYONE that had low platelet counts that were given this Neumega except me. Now you mention your friend and even her doctors didn't give her the injections of it. I read enough about that Neumega that I sure don't ever want it around me. It caused me problems the first night they gave me a shot of it. I refused the other three. Tomorrow (Monday) is my herceptin day...can't wait to see what my platelets are in the morning before infusion of herceptin? I pray they went back up some. As long as they didn't drop anymore then they were?

I thought like you did Bev...that you get a platelet transfusion if they go too low? My nurse said had my oncologist just delayed chemo this ONE week...my platelet count would of went right back up with no problem. She said that is how it is usually done. My nurse said they would of bounced back with no problem.

I sure hope I can go 5 years or more with no recurrances. But it doesn't seem like many do. But boy do I want to SHOW my so called cancer team they are WRONG about me. I want to kick some bc in the behind and go NED for YEARS to come. (Thats my plan rather they like it or not.)

When you said I may be lucky and never have to do chemo again...boy is the music to my ears....and probably so many other women here. That is a nice thought. I just pray so hard that all these people that are constantly searching for a cure...or fix for cancer comes up with one soon for ALL OF US. As long as they have been working on it...you think they would of gotten further then they have? Whomever finds a REAL cure...will be one very popular and rich person, and SAVE so many wonderful people. So you know there out there working so hard at finding one...so if nothing else we all have to hang in there because one HAS to be around the corner real soon. That is my hope.

Thanks so much for your reply Bev. Much appreciated. God bless you.

Chelee

06-18-2006, 10:22 PM	#14
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Hi Bev, Thats interesting that you mentioned your friend with Hep C that had low blood platelets. I did read on a couple of the Neumega webpages I checked out that it is also used on people with other medical conditions that drive down their platelet count. So if thats true...and this Neumega was so good for a person...you would think they would of used it on your friend. See..that is what really worries me...I can't find ANYONE that had low platelet counts that were given this Neumega except me. Now you mention your friend and even her doctors didn't give her the injections of it. I read enough about that Neumega that I sure don't ever want it around me. It caused me problems the first night they gave me a shot of it. I refused the other three. Tomorrow (Monday) is my herceptin day...can't wait to see what my platelets are in the morning before infusion of herceptin? I pray they went back up some. As long as they didn't drop anymore then they were? I thought like you did Bev...that you get a platelet transfusion if they go too low? My nurse said had my oncologist just delayed chemo this ONE week...my platelet count would of went right back up with no problem. She said that is how it is usually done. My nurse said they would of bounced back with no problem. I sure hope I can go 5 years or more with no recurrances. But it doesn't seem like many do. But boy do I want to SHOW my so called cancer team they are WRONG about me. I want to kick some bc in the behind and go NED for YEARS to come. (Thats my plan rather they like it or not.) When you said I may be lucky and never have to do chemo again...boy is the music to my ears....and probably so many other women here. That is a nice thought. I just pray so hard that all these people that are constantly searching for a cure...or fix for cancer comes up with one soon for ALL OF US. As long as they have been working on it...you think they would of gotten further then they have? Whomever finds a REAL cure...will be one very popular and rich person, and SAVE so many wonderful people. So you know there out there working so hard at finding one...so if nothing else we all have to hang in there because one HAS to be around the corner real soon. That is my hope. Thanks so much for your reply Bev. Much appreciated. God bless you. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.