HER2 Support Group Forums - View Single Post - Herceptin & soreness on the mastectomy side?

Chelee · 06-18-2006, 05:25 PM

Hi rinaina, No it can't be from Rads yet...I don't start those till mid July or so? All I have had is chemo...and it just seems it shouldn't still bother me like this? Its time to have a follow-up with my surgeon that did that surgery...maybe he will have an idea of why? Thanks for the idea though...that would be my first thought if I had done Rads.

Hi Laurie, Maybe its just normal for it to stay a little sore then? My first thought was the herceptin causing it because I noticed it hurt so much more after my very first infusion of herceptin. I thought to myself...its attacking the good cells along with the bad. So I just ignored it. But now...its went on too long and hurts too much. I recently had my PET/CT scan...and my doctor didn't say anything...so I hope and pray its fine?

You said your not doing herceptin anymore and yours is still tender. That is a better choice of words...meaning TENDER. There is one area of the incision which has healed nicely...but it is TENDER to touch. Maybe it takes longer to heal after such a serious surgery. Unless I am going to end up with that lymphadema you mentioned? That CAN show up at any time. I noticed just recently also that if I touch under the arm that had the SNB...its really painful...it was never that way. So maybe I am getting some lymphadema in that side?

At least its a thought...something to run by my surgeon when I see him. Which will be soon.

Thanks you guys.

Chelee

06-18-2006, 05:25 PM	#4
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Hi rinaina, No it can't be from Rads yet...I don't start those till mid July or so? All I have had is chemo...and it just seems it shouldn't still bother me like this? Its time to have a follow-up with my surgeon that did that surgery...maybe he will have an idea of why? Thanks for the idea though...that would be my first thought if I had done Rads. Hi Laurie, Maybe its just normal for it to stay a little sore then? My first thought was the herceptin causing it because I noticed it hurt so much more after my very first infusion of herceptin. I thought to myself...its attacking the good cells along with the bad. So I just ignored it. But now...its went on too long and hurts too much. I recently had my PET/CT scan...and my doctor didn't say anything...so I hope and pray its fine? You said your not doing herceptin anymore and yours is still tender. That is a better choice of words...meaning TENDER. There is one area of the incision which has healed nicely...but it is TENDER to touch. Maybe it takes longer to heal after such a serious surgery. Unless I am going to end up with that lymphadema you mentioned? That CAN show up at any time. I noticed just recently also that if I touch under the arm that had the SNB...its really painful...it was never that way. So maybe I am getting some lymphadema in that side? At least its a thought...something to run by my surgeon when I see him. Which will be soon. Thanks you guys. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.