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thanks for the info. I will try to find out what I am and what it's called! I'm a little confused myself but I'm doing quite well despite the on-going scares. I mean I don't think I look sick to anyone that doesn't know me and my history. So I feel very lucky.
good luck to all of you with your fight and thank you sooooo much for all the great advice and encouragement. You are all so inspiring and I'm so grateful you are out there.
sarah
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