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Chelee · 06-14-2006, 12:31 AM

Tammy, Thanks so much for your reply. I did check the page you sent me & did a search on google. I am a bit concerned about all the side affects of this Neumega. It says your doctor should make sure to go over all the risks and benefits...yet she *didn't* talk to me at all about it.

My infusion nurse went to ask my oncologist a question about my wbc...and thats when it must of come up that my platelet count was at 85 and told my nurse to give me this Neumega. So my doctor didn't even talk to me about it...and I feel she should of since I see there are many SERIOUS side affects to it.

I am even MORE concerned since I posted this message on this board and we all share something in common unfortunetly. (Cancer, chemo tx.) I find it funny NOT one person on this board other then me has had this Neumega drug to boost their platelet count? That drug was approved in 1997 and no one here has had it but me? (Thats scary.)

I went in today to get the injection and asked my oncologist nurse how often has she given this? She said not very often. (She has been a oncologist nurse for OVER 10 years.) Why is my doctor giving this to me instead of waiting to see if my platelet count goes back up on its own?

I am getting so fed-up with not being able to trust my doctors down here. They DON'T talk to me or tell me anything. My infusion nurse is more like my doctor. She is the ONLY one that really cares about me and how I feel. My oncologist tells her what to do instead of EVER talking to me face to face about my counts being high or low...or anything thats important. I can't win.

But thanks so much Tammy. That was so sweet of you to go to all that trouble to find that page for me. At least I now know this drug must not be used very often...and again...that worries me.

Chelee

06-14-2006, 12:31 AM	#4
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Tammy, Thanks so much for your reply. I did check the page you sent me & did a search on google. I am a bit concerned about all the side affects of this Neumega. It says your doctor should make sure to go over all the risks and benefits...yet she didn't talk to me at all about it. My infusion nurse went to ask my oncologist a question about my wbc...and thats when it must of come up that my platelet count was at 85 and told my nurse to give me this Neumega. So my doctor didn't even talk to me about it...and I feel she should of since I see there are many SERIOUS side affects to it. I am even MORE concerned since I posted this message on this board and we all share something in common unfortunetly. (Cancer, chemo tx.) I find it funny NOT one person on this board other then me has had this Neumega drug to boost their platelet count? That drug was approved in 1997 and no one here has had it but me? (Thats scary.) I went in today to get the injection and asked my oncologist nurse how often has she given this? She said not very often. (She has been a oncologist nurse for OVER 10 years.) Why is my doctor giving this to me instead of waiting to see if my platelet count goes back up on its own? I am getting so fed-up with not being able to trust my doctors down here. They DON'T talk to me or tell me anything. My infusion nurse is more like my doctor. She is the ONLY one that really cares about me and how I feel. My oncologist tells her what to do instead of EVER talking to me face to face about my counts being high or low...or anything thats important. I can't win. But thanks so much Tammy. That was so sweet of you to go to all that trouble to find that page for me. At least I now know this drug must not be used very often...and again...that worries me. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.