Low Platelet count = Neumega?
I just had my last full cycle of chemo today. I had my CBC BEFORE the chemo as always and my platelet count had NOT come up this time like it had all the times before. They don't know why...they said it should have?
But I let them know I don't want a transfusion if I can help it. They said I don't have to worry about that until it gets down to 20...they said thats bad.
I was told to come in tomorrow for another drug called "Neumega" which will boost my platelet count. Then two more follow up shots days apart.
Has ANYONE here had this Neumega? I have never seen the Neumega mentioned here. I hate putting more and more drugs in my body if I don't have too. I have already had EXTREME swelling in my feet and legs, two dopplers on them to check for clots. I think the Procrit causes my edema on top of the chemo. Taxotere and Carb? But now my concern is this Neumega's most COMMON side affects are: Fluid retention, wheezing or trouble breathing, fast or irregular heartbeat, headaches and dizziness.
I have already had trouble with my breathing BEORE this due to landing in the hospital. I am STILL on oxygen. So I do worry about anything else that can cause breathing problems. Then the fluid retention. If my feet, ankles and lower legs get anymore swollen I won't be able to walk on them. They HURT!!!!!!!! And I am on lasix.
So have ANY of you had these shots of Neumega...and if so did it bring your platelet count up? And did you have any of these side affects mentioned?
I dread anymore shots of anything, let alone all the EXTRA trips back and forth. But they said I have no choice since this full cycle chemo I just had today will no doubt make my platelet count drop alot more. So they said I better do it. By the way, my platelet count was at 85. Thats the lowest its ever been. How fast does this Neumega work?
I hope some one here has tried this or knows about it first hand.
Thank you...
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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