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Old 06-11-2006, 07:23 PM   #17
VaMoonRise
Deceased
 
Join Date: Mar 2006
Location: Virginia
Posts: 113
Tykerb

As most of you know I am on the clinical trial consisting of Herceptin, Taxol and Tykerb. If I were on Tykerb alone there would be no pre-meds. The pre-meds I receive on the clinical trial are Benadryl, Dechadron (sp?) and Zantac. Most would have to take a anti-diarrhea medication with just the Tykerb though as that seems to be the worst of the side effects from Tykerb but it also can cause heartburn and a slight rash that looks a lot like pimples. Overall it is very tolerable.

I don't believe that Tykerb will turn on the ER receptor from everything I have heard and read thus far.

They are also using Tykerb along with Arimidex sometimes with Herceptin as a part of this combo too.

I am not on this trial because of Herceptin having not worked, this is the first time I have been on any type of chemotherapy and I just happened to luck out and get put on this trial and I am the first person in the world to be on this combination of drugs. I believe I was chosen because of my age, good health going into it except for the mets to the liver and spine of course and my willingness to participate. So far I am responding great to the treatment. My first CT scan after just eight weeks showed that the two largest tumors in my liver had shrunk by 20%, the second scan showed more shrinkage and my recent CT scan that I had done last week showed vast improvement and many of the smallest tumors were no longer evident. My bone mets are stable.

I am very excited about Tykerb soon being available to more women and I would tell all women that are considering trying it that it is very tolerable and the worst side effect like I said is diarrhea.

I just read at my oncologists office that strawberries have a property that helps to kill off cancer cells especially in the liver, has anyone else heard of this? Good thing strawberries are in season right now. I have been eating a lot them since reading this.

Nicola
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