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Old 05-29-2006, 05:25 AM   #7
madubois63
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Join Date: Feb 2005
Location: LI, NY
Posts: 660
Lisa - What happened to me is on the rare side, but I am just not liking your reaction to the carbo. A while back, they gave me a three week dose of chemo (which I am not use to - I usually took it in weekly doses). When they gave me the chemo, I passed out when we got to the carbo. My body said no more...not happening. I am notorious for hearing the signs, but not really listening. There are two signs of acute myeloid leukemia that I didn't understand before, but know now (besides the most obvious being dropping counts). If you are having sharp pains in the left side under the rib cage, that is the spleen. When the blood cells are dying off rapidly (leukemia) they get filtered through the spleen and this can enlarge the spleen and cause pain (not very technical, but broken down to the basics). I had the sharp pains - didn't listen. They were brief and not so close together so I just brushed it off. Now the second sign for me (or third - depending on how you look at it) was feeling discomfort in my skeleton. When I would cough, I could feel it in my bones around my neck, shoulders and skull. Sounds weird, but if you felt it you'd know what I mean. I thought it was just part of the sinus infection/crappy feeling. Sometimes when I would use my arms to get up and pull my weight, I would feel like my bones are just going to snap. I don't want to scare you or anyone else, I just want to educate. I kept on taking the chemo even though in the back of my mind I knew it was time to stop - intuition?? Anyway, if you are scared, then ask (demand) a bone marrow biopsy to put your mind at ease. I am sure AML is not what you have, but sometimes we have to listen our bodies more than the ALL KNOWING ONCOLOGIST and take a chemo vacation.
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