Sherry,
I am so sorry that you are not doing well. As someone already posted I am on the Lapatinib trial consisting of Herceptin, Lapatinib and Taxol. I too have numerous lesions to the liver, too many to even count. I also have two spots on the spine. I am responding really well to the treatments. The two largest tumors in the liver have shrunken greatly and my tumor markers are around 14. I really think that if you can get on Lapatinib along with something else that you will truly start to improve. I am going to list the info I have on who you can contact to try to get on Lapatinib. Sometimes if you contact the pharmaceutical company directly they will go out of their way to get you on the drug, it is called "compassion drug therapy" or some such name. If you can't get on a trial I would definitely contact them directly.
I will be praying diligently for you and your family. If there is anything I can do to help please don't hesitate to ask, even if is doing some of the leg work for you.
This is the study doctor for the Lapatinib trial, she is also my Onc:
M. Kelly Hagan MD
Virginia Cancer Institute
6605 W. Broad St. Ste. B, Richmond, VA 23230
(804) 288-7159
AFTER HOURS # (804) 287-3000
GlaxoSmithKline Protocol # EGF104383 for Lapatinib Clinical Trial
Customer Response Center 1-888-825-5249
GSK's Customer Response Center's (CRC) hours of operation are from Monday through Friday, 8:00am - 8:00pm, Eastern Time
http://us.gsk.com/contact/contact.htm
Big Hugs,
Nicola