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Karen;
I understand your feelings about this....what a scarey thought! I would be inclined to want to stay on as well. If this doesn't prove out to be possible I would ask that I be monitored very closely using tumor markers, including the Bayer Serum Her2. I would ask my onc if I could spend perhaps 6 more months using herceptin and doing markers prior to each treatment (i.e. the morning of the treatment just before when theoretically your herceptin would be at it's lowest). Then when off herceptin while continuing to get markers done regularly, you will already have some idea of your own body and any fluctuations in results that might happen. Then, if you saw markers rise you could take a loading dose of herceptin to knock it out (and hopefully remain on herceptin for another period of time at that point). If you search out Gina's posts in this regard they are very informative. She is ER- and this makes her strategy a little more straightforward as if you are ER+ you also have the hormone side to contend with.
Keep us informed,
Cathy
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