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Annemarie · 05-18-2006, 09:04 PM

Hi Susan,
Tomorrow is my 6 year bc anniversary! I was diagnosed at 32 with Stage 3b er/pr positive and her2 +++. I have had single lesion brain mets 3 times since initial diagnosis. I will give you "my" best advise and that is to get the WBR. I did not do things correctly. I kick myself for not listening to my doctor. I even called the ACS and they faxed me studies indicating that WBR was the appropriate treatment. I also went to a teaching facility and the head of oncology told me the same. I am so stubborn and I punished myself for a long time by not following all of the doctors I consulted with advise.

The second brain met was so close to the spinal cord I had to have a spinal tap and they were almost certain it went into the spinal fluid. Well that was not the case -thank god. I did have RT to the brain half and half (which is not the way) plus Temodar. My brain function is almost normal. I suffer a little bit from memory loss but everything is pretty much normal. My hair is not as thick but I have my life. Everyone is different but I personally think I could have saved myself a lot of hard ache if I was treated as recommended the first time. Just my opinion based on all I have been through. I respect others right to choose other options. And whatever path you take I will say a prayer for you!! I go for a brain MRI tomorrow!!

05-18-2006, 09:04 PM	#15
Annemarie Senior Member Join Date: Nov 2005 Location: New York Posts: 90	Brain Mets Hi Susan, Tomorrow is my 6 year bc anniversary! I was diagnosed at 32 with Stage 3b er/pr positive and her2 +++. I have had single lesion brain mets 3 times since initial diagnosis. I will give you "my" best advise and that is to get the WBR. I did not do things correctly. I kick myself for not listening to my doctor. I even called the ACS and they faxed me studies indicating that WBR was the appropriate treatment. I also went to a teaching facility and the head of oncology told me the same. I am so stubborn and I punished myself for a long time by not following all of the doctors I consulted with advise. The second brain met was so close to the spinal cord I had to have a spinal tap and they were almost certain it went into the spinal fluid. Well that was not the case -thank god. I did have RT to the brain half and half (which is not the way) plus Temodar. My brain function is almost normal. I suffer a little bit from memory loss but everything is pretty much normal. My hair is not as thick but I have my life. Everyone is different but I personally think I could have saved myself a lot of hard ache if I was treated as recommended the first time. Just my opinion based on all I have been through. I respect others right to choose other options. And whatever path you take I will say a prayer for you!! I go for a brain MRI tomorrow!!