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Thanks for your thoughts and support. I've got to decide if I am nervy enough to fly across the country to show up on his doorstep without an appt. I would like to think that I'm brave enough - I'm just not sure.
I have no symptoms other than no reflexes in my knees. I play tennis and I walk regularly - so the lack of reflexes has had no impact.
I had a recurrence in a pectoral lymph node and what were thought to be lung mets last fall (they were so small that I refused a surgical biopsy). 6 months of Navelbine / Herceptin later, I was NED at my last PET scan. I continue on Herceptin.
The dr. is pushing hard for wbr because 1) at original diagnosis 6 years ago, I had more than 10 lymph nodes positive and 2) it apparently metasized to the lungs. He's concerned that because of the multiple mets there are more that are not visible on the scan. He's concerned that I will have an immediate recurrence.
Another option that he has raised is to drop the dose of the wbr and spread it out over a longer period of time to reduce the potential for damage. Conceptually, I like that idea. However, it seems to me that the cumalative damage is still there.
We are also exploring the various drugs to protect the brain during radiation. Al, thanks for the names. I'm continuing to research them and talking with the dr.
Thank you again for your support.
Susan
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