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Hi Sassy
A group of Breast Cancer survivors in my area formed a group and call ourselves Hooter Pals...we get together for informal meetings once a month, publish a list with what types of cancer, treatment and Dr's including surgeons, plastic surgeons, oncologists etc each has used. We are a telephone support group for each other and any newcomers who are diagnosed. We are in contact with the hospital wellness committies, and when a new woman is diagnosed, we send her info on our group and a nice little support gift bag of pink ribbon items. We are active in thew komen Race every year, raise about 10,000 a year for our local relay for life etc. We participate in health fairs etc, just to let others know we are available...we have even been in a few parades with a float and all. We had sweatshirts and tshirts made that look like the Hooters shirts only ours say Hooter Pals and are in pink.
We often have guest speakers including massage therapy, look good feel good by ACS, Reikki, a phychologist on dealing with emotional issues and even a few "party nites" where we all meet at a local pub and have a few....it is very informal, many times we all sit around and chat about treatments, whats new on the Horizon or just a question time for newly diagnosed...we have even had a few show and tell on reconstructions....breasts, nipples, tattoos, no tattoos, tram flams, diep proc., inplants etc...WE ARE NOT SHY!!!!
What started to be a group of 12 has grown to 40!
We have a Christmas Party every year, a swim day in the summer...just having fun and enjoying life through all of this...and our ages range from 27 to 70! When someone gets reconstruction, we throw a "boobie" shower for them with funny and sensible gifts...it is a great group! It helped me through many rough times!
Hope this helps
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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