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Chelee · 04-29-2006, 03:25 PM

Hi Jane, When I "first" started the herceptin I had something close to what you are experiencing. I had my first loading dose of herceptin along with my taxotere and carbpotin. No problems. But the second time I went down for my weekly infusion of JUST the herceptin I was fine all day...went to bed...then woke up to potty. When I got out of bed SLOWLY as I do since all these drugs...i had this LOUD pounding in my ears. It not only sounded like pounding...it sounded like I had liquid in my ears. (It really SCARED ME!) (I was standing straight up....not bending over like you.) My pulse was up to because I did check it. I was at 115. But I don't know if that was because I woke up and had such anxiety over the pounding in my ears and the fluid noise....or that was really what my pulse would of been? My normal resting pulse has NEVER been any where near that.

All that being said...I TRIED not to panic...which was really hard not to do. Went back to bed very carefully and woke up and called my doctor asap and told him what happened. He said that was STRANGE and he had NEVER heard of such a thing. (The way he said it to me made me feel like he thought I MADE IT ALL UP!) He asked if it was STILL that way since I got up? I said "No...not now.". He said then I would NOT worry about it. (Easy for him to say!)

But I was sure worried about my NEXT weekly infusion of just herceptin after that happened. But...much to my surprise...it never has happened again. Just that one time. So I don't understand why only the once?

Maybe the body has to adjust to these drugs? All I know...is I have had many different and strange side affects that my oncologist will tell me he has NEVER heard of...but yet I come to this board...and one other I check out...and its sure funny us women going through all this have usually heard of any strange side affect mentioned...unlike these oncologist. (Maybe they should read some of these boards...they might learn alot about what we go through.)

If your like me....and I hope you are....that pounding won't happen again. I can't explain it...but I did have that one BAD experience....and then never again? (Weird.)

Chelee

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DX'd 12-20-05, Stage IIIA, Her2/Neu 3+++, Er & Pr +, 5 of 16 positive nodes, Richardson scale 9 of 9,

04-29-2006, 03:25 PM	#4
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Your NOT alone on this one... Hi Jane, When I "first" started the herceptin I had something close to what you are experiencing. I had my first loading dose of herceptin along with my taxotere and carbpotin. No problems. But the second time I went down for my weekly infusion of JUST the herceptin I was fine all day...went to bed...then woke up to potty. When I got out of bed SLOWLY as I do since all these drugs...i had this LOUD pounding in my ears. It not only sounded like pounding...it sounded like I had liquid in my ears. (It really SCARED ME!) (I was standing straight up....not bending over like you.) My pulse was up to because I did check it. I was at 115. But I don't know if that was because I woke up and had such anxiety over the pounding in my ears and the fluid noise....or that was really what my pulse would of been? My normal resting pulse has NEVER been any where near that. All that being said...I TRIED not to panic...which was really hard not to do. Went back to bed very carefully and woke up and called my doctor asap and told him what happened. He said that was STRANGE and he had NEVER heard of such a thing. (The way he said it to me made me feel like he thought I MADE IT ALL UP!) He asked if it was STILL that way since I got up? I said "No...not now.". He said then I would NOT worry about it. (Easy for him to say!) But I was sure worried about my NEXT weekly infusion of just herceptin after that happened. But...much to my surprise...it never has happened again. Just that one time. So I don't understand why only the once? Maybe the body has to adjust to these drugs? All I know...is I have had many different and strange side affects that my oncologist will tell me he has NEVER heard of...but yet I come to this board...and one other I check out...and its sure funny us women going through all this have usually heard of any strange side affect mentioned...unlike these oncologist. (Maybe they should read some of these boards...they might learn alot about what we go through.) *If your like me....and I hope you are....that pounding won't happen again. I can't explain it...but I did have that one BAD experience....and then never again? (Weird.)* *Chelee* *---------------------------------------------------------------------------------* *DX'd 12-20-05, Stage IIIA, Her2/Neu 3+++, Er & Pr +, 5 of 16 positive nodes, Richardson scale 9 of 9,*