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Old 04-27-2006, 05:23 PM   #4
Sheila
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Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
Jax
It is bad to get this news as a birthday gift...I did when I was 50! I dont ever remember asking for THIS!!! The probably did the IHC test on your tumor, and now are doing a FISH test to make sure the Her2 is positive, because the IHC tests can have false positives. It sounds good that the SNB was neg, and they will probably do the Tamoxifen or something newer in pill form for the ER +. Hopefully you can get the Herceptin if your tumor is a strong Her2 as it is very promising at preventing a recurrence in newly diagnosed...wish it was available when I was diagnosed 4 years ago! Radiation will probably be added if you just had a lumpectomy, and since it is DCIS and not invasive cancer, you may not need any chemo....don't be afraid to ask questions here...there is always someone who has been in your shoes....or had a given treatment....the biggest fear is fear of the unknown...and we all help each other with that. Be comfortable with your Dr and oncologist...if you are not, seek another opinion...many of us have done that! Welcome to our club....we wish people didn't need to join, but we are here for you!!!
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Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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