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I am happy to know that hospice is changing. In 1998 Hospice made us feel guilty even for having my father on supplemental oxygen while in their care. They wanted nothing given to him while enorolled with them other than pain meds. They would tolerate no treatments for the underlying problem. I am still quite angry with the way we were treated.
Thank heavens they seem to have changed. I know of no one that has had the bad experience we did. Most swear by them. How helpful they are. Talk with them inadvace about your concerns. I really do believe that they are more open to long term care than they were.
Wishing you the best
Janet
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