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Hi Jen,
I had Stage IIIC bc, and will finish my year of Herceptin in August. I do not plan to get an additional year, and I know that my Onc would never give it to me. There is no evidence to suggest that it would help, and could possibly do damage to my heart. There is evidence to suggest that a shorter course would be appropriate, and hopefully the two year study will be out soon.
I cannot put myself in your shoes, but for myself, I half wish I could get less Herceptin-- my MUGA is dropping and that really bums me out. If the disease were to progress, I hate to think that my heart would have sustained too much damage to try another round of drugs.
I understand the motivation to try and do everything that you can. Have you considered one of the vaccine studies? I am looking forward to ending Herceptin so that I can enroll in one-- early-stage patients who are on Herceptin are NOT eligible.
Good luck with your decision.
Jen
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