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Al,
I'm so sorry....
All I have to offer is my own quick response on Temodar/Xeloda. I may be one in a million (or some other number) and I do feel 'lucky'. But, I DID notice improvement within the first week on my schedule. Maybe within four days. The 24/7 dizziness I had been living with decreased and stopped.
Two subsequent Mri's showed shrinkage of nearly 50%. The two following Mri's showed stable/ no new lesions. That is where I stand today...
But I do like the idea of going right to the source for Lapatinib/ Tykerb. I'd try that myself.
many hugs to you both,
patty
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