HER2 Support Group Forums - View Single Post

StephN · 04-14-2006, 11:19 AM

You have every right to be PISSED at that med onc who threw in your Mom's towel in such a cavalier way. To me that was the highest and most unfeeling insult. Not to look at the situation with any more than a STOP sign for your Mom's treatment. What Hippocratic oath?

I am very glad to see that you have had the chance to get a little sleep as well as a little satisfaction that there will be more tests to check the results of the PET scan. Too bad you can not get a PET/CT fusion scan.

Your poor Mom is obviously aware that something is amiss even though she is not understanding everything. People in stages of senility still have some feelings and know when the "atmosphere" changes. I hope these next docs will be truly gentle with her.

I read your other post late last night but wanted to see what today would bring for you. Like another post, I had the suspicion that the PET could be bright for other reasons.
After what happened to me this year, I will be the FIRST person to question a PET. Maybe you don't recall, but my brain PET this Jan. was very bright and all the specialist docs on my treatment team were just sure that the tumor was regrowing. NOT! Another case of radiation necrosis that was bleeding on itself. But there is not presently another good way to tell the difference.

I would even go so far as having one of Mom's spots biopsied before letting them take her off the Herceptin. Stick to that onc like glue until he writes the order. Stay in his face. Medicare be dam***.

What a way to treat someone who has made a monumental effort to take care of his Mom. I am glad you fought back and let him know how you felt.

04-14-2006, 11:19 AM	#3
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	You have every right ... You have every right to be PISSED at that med onc who threw in your Mom's towel in such a cavalier way. To me that was the highest and most unfeeling insult. Not to look at the situation with any more than a STOP sign for your Mom's treatment. What Hippocratic oath? I am very glad to see that you have had the chance to get a little sleep as well as a little satisfaction that there will be more tests to check the results of the PET scan. Too bad you can not get a PET/CT fusion scan. Your poor Mom is obviously aware that something is amiss even though she is not understanding everything. People in stages of senility still have some feelings and know when the "atmosphere" changes. I hope these next docs will be truly gentle with her. I read your other post late last night but wanted to see what today would bring for you. Like another post, I had the suspicion that the PET could be bright for other reasons. After what happened to me this year, I will be the FIRST person to question a PET. Maybe you don't recall, but my brain PET this Jan. was very bright and all the specialist docs on my treatment team were just sure that the tumor was regrowing. NOT! Another case of radiation necrosis that was bleeding on itself. But there is not presently another good way to tell the difference. I would even go so far as having one of Mom's spots biopsied before letting them take her off the Herceptin. Stick to that onc like glue until he writes the order. Stay in his face. Medicare be dam***. What a way to treat someone who has made a monumental effort to take care of his Mom. I am glad you fought back and let him know how you felt.