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Hope-
I am on xeloda, and was in the clinical trial now getting tykerb. I have been on xeloda for 10 months - the dosage is based on weight, but I was started out at 2500mg/m2, which for me was 4300 mg/day. After having virtually no quality of life problems with my previous chemos, (TEC/herceptin/navelbine), I got every symptom in the book with xeloda after 2 cycles (of 14 days on/7 off). I took a break from it, and then the dosage was reduced by 25%, to 1875mg/m2, which for my weight is 3300 mg daily. Occcasionally I have to take some breaks on that, but not for too long. Oh, and the only symptom I get now is the H/F...
the clinical trial seemed designed for those of us who have failed herceptin, and I would certainly look at the links Joe posted to call and see if you can get tykerb along with the xeloda. Don't be put off if when you try it on the computer, it says you don't qualify - that's what happened to me, but i followed up with a phone call to the nurse handling the clinical trial at the nearest hospital, and she told me i qualified...
i hope things improve for you xeloda, and let me know if you have any other questions...please don't let your symptoms get too bad - don't try to "tough it out" - as soon as they start, keep your onc/nurse posted, so they can evaluate you and make any changes...
regards,
shell
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