04-08-2006, 11:01 PM
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#10
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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I have been on herceptin also. Two full rounds of chemo with weekly herceptin. This last time both ankles are really swollen, red and WARM to touch. Concerns me. I was sent to a pulmonary doctor and he just listened to my heart and looked at my ankles and legs and said to go to the hospital and have a doppler done on both ankles and legs. The gal that did the doppler sent me home so I guess I am fine as far as they are concerned.
But I am not real happy about this. I had a 10 day stay the first round after chemo due to low wbc...got infection. Delayed chemo. But ended up on oxygen and in fact I am still on it...even here at home.
So now here I sit on oxygen...and now I have the swollen ankles which are RED and again...warm to almost hot to touch.
I asked my pulomary doctor if it was ok to go ahead with my chemo THIS Monday (4-10-06). He said yes. I hope they know what they are talking about.
My very first chemo which was herceptin, taxotere and carbpotin I didn't have ANY swelling of legs, feet, or ankles. And that first round I even had the weekly herceptin. Now this time around I had NO swelling until about the 3rd week after the infusion.
I wouldn't be as concerned if it wasn't for my breathing difficulties...on top of the swollen feet, ankles and lower legs. It like now that I had the doppler, and he gave me some lasix (water pill) to take...its ok to go ahead with the chemo.
I too watched that show you are talking about on channel 7 where the women ended up with heart failure from a cancer drug she had. I had the same thoughts you did.
I am suppose to take my decadron in the morning and again that evening to prepare for my chemo Monday...and I would be lying if I told you I wasn't worried and stressed out. I thought after the lasix my ankles would come down some...but they haven't much at all? I have had swollen ankles before...but NOTHING like this. They are hugh! And oh so painful to touch. It hurts to walk. My oncologist just told me to go home and put my feet above my heart.
It seems the only one concerned is me. 
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