[AlaskaAngel]

Hi Sue. Your description fits me to a T. If I get up at night I have to aim to the right of where I really want to go or I end up hitting things to the left and missing where I am trying to be. I've had this for 1 1/2 months, along with simple occipital neuralgia -- which feels like someone is smashing a board up against the back of my head most of the time. The occipital neuralgia I have is not related to the cancer or the disequilibrium.

I had much worse loss of balance with the spinning feeling about a year after diagnosis, and saw my internist, who did all the standard office tests and then together we decided it was probably typical vertigo. It went away eventually.

I am stage 1, grade 3, and 4 years out. This time, because the disequilibrium has lasted so long I just had an MRI with and without contrast, which was completely clear other than a small spot or two typical for age. I don't know how long you have had the problem, or what stage you are.

With the clear MRI I have scheduled an exam with the ophthalmologist to see if maybe the disequilibrium is really eyestrain of some sort and a need to wear glasses on a steady basis. If there isn't anything to that idea I will try to check things out with an ENT. If I were you (and if you were diagnosed as early stage like me) I'd suggest you do those 2 things before going for the MRI.

Let us know how it goes,

AlaskaAngel

P.S. For anyone with occipital neuralgia, the only thing that seems to help with that is using a low dose of a muscle relaxant like Flexeril.