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StephN · 04-04-2006, 11:05 AM

Dearest Lyn -
Good to hear from you, but NOT that you are in a wheelchair.
You know how some of us are worry warts and far be it for us to make any suggestions - BUT...
You stated that your blood pressure is 95 over 50 and You take "Dilatrend 65mg to lower blood pressure."
With that kind of low blood pressure your circulation must be sluggish and I can't understand WHY they keep you on something to LOWER your blood pressure. That is the drug I would question first.
You need LOTS to liquids - I doubled my water intake when I was on Dex, the Steroid from Hell - but maybe you are shy about the liquid intake due to the fluid around your heart??
You are a complex case, but remind me a little of my late Mother-in-law who would go back to France and get put on SO many drugs that she would feel just awful when she got back here. We had to cut several and she would feel better.
Also when you cut your Dex too quickly you WILL get PAIN. There is a proscribed weaning schedule that you will feel a LOT better if you use. Dropping from 16 to 4 mg in one day may give you some problems. I had terrible pains in my legs - excruciating actually - and was trying to follow their schedule!
All best wishes for a good scan, MRI and whatever else. Just give that new group of cancer drugs some time and space to win the joust.

04-04-2006, 11:05 AM	#6
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Blood pressure Dearest Lyn - Good to hear from you, but NOT that you are in a wheelchair. You know how some of us are worry warts and far be it for us to make any suggestions - BUT... You stated that your blood pressure is 95 over 50 and You take "Dilatrend 65mg to lower blood pressure." With that kind of low blood pressure your circulation must be sluggish and I can't understand WHY they keep you on something to LOWER your blood pressure. That is the drug I would question first. You need LOTS to liquids - I doubled my water intake when I was on Dex, the Steroid from Hell - but maybe you are shy about the liquid intake due to the fluid around your heart?? You are a complex case, but remind me a little of my late Mother-in-law who would go back to France and get put on SO many drugs that she would feel just awful when she got back here. We had to cut several and she would feel better. Also when you cut your Dex too quickly you WILL get PAIN. There is a proscribed weaning schedule that you will feel a LOT better if you use. Dropping from 16 to 4 mg in one day may give you some problems. I had terrible pains in my legs - excruciating actually - and was trying to follow their schedule! All best wishes for a good scan, MRI and whatever else. Just give that new group of cancer drugs some time and space to win the joust.