[Lani]

have you been on any antihormonal (tamoxifen, arimidex, femara, etc) and are you both er+ and pr+ or are you er+ and pr-

It would also be helpful to know if you were pre- or post-menopausal when you were diagnosed(and if you had your ovaries removed or received shots to shut your ovaries down?)

Once we get 18-24 responses, I volunteer to try to get the info forwarded on to Genentech and others and see if we can get them interested in pursuing it further.

So the questions are:

(1)when first diagnosed with breast cancer
(2) when diagnosed with metastatic breast cancer(ie, was it metastatic when first diagnosed or did it metastasize years later)
3) age at diagnosis, pre vs postmenopausal, whether ER+,
whether PR+, whether received antihormonals (which), ovaries removed(?)
4) did the hormonal status of the tumor match that of the metastases (if known ie, if the mets were biopsied)
5) any other information regarding type and duration of chemo is also helpful
6) what type of maintenance therapy you are on

7) whether you were ever on antihormonals without herceptin or herceptin without antihormonals if you are ER+

8) where your mets are/have been ie, liver, bone, lung, brain

We may be trailblazing with this!!!

At the very least, it will paint a picture for others on this site regarding the
fact that her2+ breast cancer no longer carries the same "dire" prognosis cited in the literature before the advent of Herceptin and that even Stage IV her2 can be compatible with an enjoyable, functional and meaningful life!

Thanking everyone in advance for their help and participation...

Lani