WELLL WELL WHERE TO BEGIN? Light at the end of the tunnel, OK going backwards, had second dose of Gemzar with other drugs, I have been pretty much wiped out the last few weeks so hopefully you will be able to get your heads around all of this. Hospitalised again for low blood pressure, Left ventricle regular echo showed down to 46% so my onc thought the worst, arranged for me to have heart biopsy, I was admitted with all normal BP, pulse. oxygen and temperature, on paper I don't look sick, red and white cells still a bit low but not a concern, liver function, kidneys and others all ok, blood pressure back down again to 90/50,no one seems too concerned, only me and the family when I bump into them. My onc told me he was cancelling my chemo, because things can go wrong, I was OK up until then so I lost it for a couple of hours. Got down to the lets get stuck in and specialist said he didn't feel it warranted to do a biopsy on the result of the CT as he could do more damage than good so he wants to just do another echo in a couple of weeks, wouldn't have thought CT and Echo would be so different, I still had my herceptin this week and stongly feel positive that there is nothing there to look for, the lumps under nmy arm also seem to have gone. I believe I may have had the beginnings of Pericardus again but because I was already on anti-biotics and NSADS, the protocol treatment I had the first time, that we stopped it before it got full blown, well that is my diagnosis and I am sticking with it, so I am happy about that, it took longer to get out of the hospital than to get in and they still hadn't caught up to me with my chart, good thing I knew what I was doing, many phone calls were made and Boris my onc agreed with them also, I saw him at chemo and I told him I am an alian programmed for things to happen at certain times and when they can work me out they get to meet the intelligent life forms. I have been in so much pain, worst is fractured shouder, which was apparently my collar bone I fractured in October, so when I fell on the boat from hell, I chipped another part of the bone off, I top up with Ordine if I need to. Radiation still on hold if needed, so we still have a lot of options to get me back on deck, including the new trial drug from Melbourne, and sober of course, I will be cured along with all of my lovely friends, no FAMILY, on this site. I am up on the steroids at the moment so I tended to ramble on a bit, at least I didn't get out the vacuum cleaner. Oh and as for the family matters with my kids, I won't even go there at the moment, some rest I am supposed to be having.
Love & Hugs Lyn
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