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I am perhaps, an exception to the rule, but I do have IBC (inflammatory) and have a bone, and cat scan every 6 months on my oncologist recommendation. Have never had a PET scan not recommended by oncologist for me. I am 5 years our with skin mets. Everyone thought I would be gone by now or at least at the end stage of this disease. So far no bone or organ involvement that we know of. If I present with any symptoms what so ever my oncologist will get me the necessary test ASAP and that has happen a few times which turned out to be nothing. Sounds like you are within the guidelines with no node involvement and early stage. hugs, Sandy
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