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Christine founder of this site has been on Herceptin nearly 6 years, I believe, to my knowedge has had no side effects. Now, my oncology nurse was telling me Friday that there is some talk that they will be cutting down from giving a year of Herceptin to early diagnoses because of CHF. They just recently had two people who nearly died form it. She said they are seeing more problems with it now. My oncologist told me he is very concern for me because I have been off and on it for nearly 4 years. The last two years with no break. He is now doing mugas on me every 3 months. One time my infraction rate went down to 53 and he was very concern but then it went back up to 65 the last time so he said, "wow, I am glad". I think it may depend on the person and also how many chemo drugs we have had. I know that adramaycin is very bad as far as Herceptin is concern. I wonder if it makes a difference how close we get Herceptin after having the adramaycin? If it is less then a year then is it too close and then that means trouble. I only know one person in my area that had to stop it but she was older and had heart problems before. She nearly died from it. I don't like being on it but so far no problems and if the drugs don't get us the disease will so what are our options looks like death sooner or later. Sorry if I sound negative but its reality. At least one good thing is death for me means a better place then here. One person did remind me though that no matter where this disease takes me that it still will not be as bad as when Jesus died on the cross of our sins. That sure has made it easier for me to think about. Enough didn't mean to start preaching. hugs, Sandy
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