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Hi Lolly, Steph and Sherry,
I have been on xeloda almost a year. My hair hasn't fallen out, but has been thinning. I started at 3000mg daily, but I'm down to 2000 because of dizziness, shakiness and headache. This week they took me off of it for a few days and I'm not sure what they will tell me tomorrow when I get my herceptin. I also have the hand-foot syndrome. I wasn't so upset when they reduced my dosage. It stopped all of the diahreah I was getting which was a lot. I remember someone on this board, I beleive it was Al, who said that when they did the original testing for xeloda they set the dosage much higher than needed. He said if you have undesirable side effects , they could easily cut the dose in half. It has really worked for me (along with lots of prayer) and now I am NED. Do you know how long they keep you on the stuff if you are NED? God Bless- CathyW
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