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Jade · 03-13-2006, 09:31 PM

Neulasta is the one-shot medication which I received after my first EC chemo by mistake as it wasn't covered (don't know if it is now) by our provincial medical plan, after that I received Neupogen which is (to my understanding) the same thing only administered over 7 days, one shot per day. With both medications, 7 days after the first shot I experienced the bone pain you are talking about, the pulsing... The pain in my hips/pelvis/tailbone felt like someone was trying to pull me apart, north & south, like my tailbone and whole upper body was being pulled up and something was pulling down on my hips and legs. The first time I foolishly went for a walk thinking it would help, but by the time I made it home from around the block I could barely walk. No one had told me about this pain so you can imagine, the first thing I thought was "IT is in my bones". The kids were asleep, I was trying to decide whether to go to hospital, got on the "Nurses Hotline" who advised me to go to Emerg, and then I thought "you know what, if it IS in my bones it's not gonna make any difference if I'm home or in the hospital tonight", (the pain wasn't excruciating, just weird and scary and debilitating, but not morphine level) so I stayed home and went to bed. The next morning the pain was gone. That first time was the worst (with the Neulasta). After that with the Neupogen I had what you describe, the pulsing and tugging would last about 30 secs, on and off for about 3 days. My onc said it's the body repairing itself, the platelets forming etc. Pain for a good cause!!
It's the C-word that's the alien within.
All the best to you Sadie,
Jade

03-13-2006, 09:31 PM	#20
Jade Senior Member Join Date: Feb 2006 Location: Vancouver Canada Posts: 72	Hi Sadie! Neulasta is the one-shot medication which I received after my first EC chemo by mistake as it wasn't covered (don't know if it is now) by our provincial medical plan, after that I received Neupogen which is (to my understanding) the same thing only administered over 7 days, one shot per day. With both medications, 7 days after the first shot I experienced the bone pain you are talking about, the pulsing... The pain in my hips/pelvis/tailbone felt like someone was trying to pull me apart, north & south, like my tailbone and whole upper body was being pulled up and something was pulling down on my hips and legs. The first time I foolishly went for a walk thinking it would help, but by the time I made it home from around the block I could barely walk. No one had told me about this pain so you can imagine, the first thing I thought was "IT is in my bones". The kids were asleep, I was trying to decide whether to go to hospital, got on the "Nurses Hotline" who advised me to go to Emerg, and then I thought "you know what, if it IS in my bones it's not gonna make any difference if I'm home or in the hospital tonight", (the pain wasn't excruciating, just weird and scary and debilitating, but not morphine level) so I stayed home and went to bed. The next morning the pain was gone. That first time was the worst (with the Neulasta). After that with the Neupogen I had what you describe, the pulsing and tugging would last about 30 secs, on and off for about 3 days. My onc said it's the body repairing itself, the platelets forming etc. Pain for a good cause!! It's the C-word that's the alien within. All the best to you Sadie, Jade