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Old 03-08-2006, 01:50 PM   #11
madubois63
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Join Date: Feb 2005
Location: LI, NY
Posts: 660
>>I can't get out of my head what his peer said to me about him having me take Deximethsone AFTER the fact. This doctor has been an oncologist a LONG TIME and flat out said you NEVER give that Deximethsone after the herceptin because it can cause a reaction. It FLEW out of her mouth. So was it really the herceptin...or because he had me at the Deximethsone? I have heard so many different things I haven't a clue.<< I am no doctor and I am not sure what happended to either of us. If we went to the same center, I'd say it was a bad batch of something...I just know I do not like that feeling.

>>madubois63, why did you have a *triple* dose of Carb, Taxotere, Herceptin? I have never heard of that done. Seems like alot.<< My body thought it was a lot too. The reasoning behind the high dose chemo was that I could get the chemo in and get a neulasta shot for my white counts. I was on a three week on/one week off schedule with the chemo. That wasn't leaving enough time in between the shot and chemo - I think there has to be a 10 or 14 day period between the next treatment. Anyway, the "new" plan would also give me time off since I've been going to the center every week. This way, I would only have to go in for the shot the day after chemo and then I'd have nearly three weeks of no doctor appointments. But...this certainly did not go the way it was planned.

>>That is really interesting about them giving you the Decadron and it feeling like *glass* running through your veins. Plus you had the oral thrush too. << that's why I responded. Sounded way too familiar...

>>I have already had 14 down days and I DON'T feel any better so I am really gettting worried. Without the predisone...I am not sure I could breath. I hope this isn't permanet damage?<< Do you have an inhaler?? Ugh - I hate prednisone - tastes horrible going down...

>>Everytime I get all positive and ready to fight this...something has to happen. But I won't give up. << I feel the same way. I am now coughing heavily and have lost my voice. I am also very tired...I feel like such a lump being in bed for so long. It's just not me. I hope we both feel better soon....
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Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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