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Hi madubois63, Your post sounds a bit like my experience. You mentioned getting pink in the face and swollen.
I can't get out of my head what his peer said to me about him having me take Deximethsone AFTER the fact. This doctor has been an oncologist a LONG TIME and flat out said you NEVER give that Deximethsone after the herceptin because it can cause a reaction. It FLEW out of her mouth. So was it really the herceptin...or because he had me at the Deximethsone? I have heard so many different things I haven't a clue. I just want to get back on track and fight this diease. I hate just sitting here doing nothing.
madubois63, why did you have a *triple* dose of Carb, Taxotere, Herceptin? I have never heard of that done. Seems like alot. That is really interesting about them giving you the Decadron and it feeling like *glass* running through your veins. Plus you had the oral thrush too.
I am sure sorry to hear about your experience as I know it wasn't pleasant. I want to ask them what dose they gave me this last time of the herceptin? I wonder if they increased it and never told me? I have no clue how much of anything they give me. Time I check it all out. I have already had 14 down days and I DON'T feel any better so I am really gettting worried. Without the predisone...I am not sure I could breath. I hope this isn't permanet damage?
Everytime I get all positive and ready to fight this...something has to happen. But I won't give up. Thanks so much for your reply madubois63. I found your post really interesting especially since you mentioned the feeling of glass going through your veins.
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