It feels SO good to be a "RESPONDER"!!! I was really worried about what the tumor location pain was all about. Now I know it was necrosis pain - for sure!
Add me to the list of Herceptin gals! (I'm also p53 gene mutation positive.)
I just had my CA27-29 tested for the first time about a week ago and it was 15.2. I thought at the time that the number should have been higher with active disease. But hey! Maybe the number was low because there isn't much disease left. Why didn't I think that before? I was just focused on the test being useless. LOL! Go figure! I need to work on my positive thinking huh? :P
I sure would love to be around for a long time! My kids are only 2, 5 and 6. I hope I will be around long enough to see them graduate high school - or longer!
One thing is for sure, you gals are great. I have found so much encouraging news here. When I got back from my initial onc visit, I felt like my world was over. With a little bit of luck, I found this site a few days thereafter and it has been something I check in on a LOT. I'll be a regular... :-) It's a great place to communicate with others who are going through similar situations. I am sorry we are all here, but at least we are here together.
When my mother died 4 months after being told she was Stage 4 and only 33 years old, with bone mets, I was terrified to be Stage 4. Now with Herceptin, I feel like I may be around longer than she was. I'm 31 now, so it's only 2 years away! I think that will be pretty easy now that I'm a "responder"...
Lots of Hope, Julie