Thread: Lyn
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Old 02-28-2006, 01:10 AM   #8
Lyn
A Living Legend
 
Join Date: Oct 2005
Posts: 235
Well, Well, it only got worse, I got the MRI result and I will paste what I sent Deborah, and if I have missed anything I will add it on.

Hi Deb, I thought I lost that post, it came up as an error, so something did go right but that was all. I picked up MRI result, can't use arm because I have a tumour on C3 C4 and a mass wrapped around the chord, wasn't quite sure what to do because my onc is away until Friday so I faxed it to the trial onc Jason and he rang back in a panic with instruction for me to get to ER it seems that I am endager of becomming a Para even Quadraplegic, well my low blood pressure went through the roof, lucky I still had steroids I had to start them immediately, they kept me in hospital until today and I had to go straight to the Big Private Hospital 50ks away where I have my radiation, I am no stranger there, I have had over 100 doses, he looked at the MRI and was going to compare where I had not been treated, it seems that even radiaiton in the wrong spot can tip me over so he wants me to see a neuro surgeon at the same hospital I have my Herceptin, good thing I know them there, but he is convinced that he won't be able to remove it either and may only be able to remove the pressure giving it more room, but that also means more room to grow, but there is light at the end of the tunnell it seems the Rads onc is getting a new machine in April, thankfully I can say April is only 4 weeks away now, it isn't the gamma knife but similar so maybe the cyper knife if not the same thing but it is for brain tumours but he doesn't feel there would be a problem for the spinal chord so I put my hand up as first guinea pig. The things that go through your mind, the MRI was done before I fell on the ship so hopefully there is no more damage, I have to restart my eostrogen blocker which I stopped in September with the new chemo, maybe a coincidence but I got all of the arm and pain problems in October which stands to reason if the tumour was growing. Well I only hope my so called friend feels real bad when she finds out, it was only after that fall that I started getting ill so maybe not all sea sickness. I am home now but none the wiser as to what will happen, I still have it in the breast as well so will be looking at Gemzar. All I could think of was no one can do the internet banking, the power, phone you name it bills are all due to be paid, I don't even know where my will is let alone how the insurance is, so I figure I will have to stay longer on this planet just to sort out things. One saving grace was that my rads onc wants to see me in 2 weeks, I thought well that's a relief I will still be here then and still walking God willing. It may be easier for me to cut and paste this reply just so you don't have to read it again. Talk to you soon.

I think that just about covers it, but not so sensitive relatives were at it again, I had to argue that the photo they all thought was wonderful was one I hid and gave Casey instructions not to buy because it looked like I had a stroke down one side, but they kept saying it was lovely, I said yeah only because I am alive in the picture now take a closer look and they agreed that my face wasn't how I would like it to be, so I said when you bury me at 90 put a phot of me at 30 on my grave, then my other sister said what will Ron do if anything happens to you he will have to get a job, like what he has been doing all these years, she tried to explain she didn't mean it that way and I said maybe not but the rest of the family will take it that way anyway, and she is just worrying that I won't be able to make her daughters weeding on the 17 March, I don't want to go so maybe a good time to bail out, can you believe it the wedding is going to be like the feuding hill billies and while they think it is wonderful my 86 year old mother is going to be a brides maid, she had a fall the same day as me, but flat on her face and she looks like Phantom of the Opera and she takes a long time to heal, the brides brother has just got out of jail and is on home detention but trying to get an 8 hour pass for the day, he was born from the Devil's Sporne that kid since the age of 2 he was setting fire to houses so half of them I don't speak to either so I don't need the grief, I have convinced myself I am not going, I take a horrible phot anyway and the bride is size 24 that is big over her like 130 kilos and my daughter was going with me and they do not look like cousins so I don't think they really want anyone to out shine the bride. Well I have to get to the pharmacy now and get my Aromasin without a script and owe him one. Talk to you all soon, yeah, I had my blubber day yesterday so I am kind of back on track, I think once you know you aren't dieing tomorrow there are always more tomorrows.


Love & Hugs Lyn
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