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StephN · 02-15-2006, 08:29 PM

Your question is a good one and is the reason so many of us are here on this particular board to share our experiences.
I for one would have been gone probably 3 years ago after first showing of rampaging mets. Fortunately I was the first one through a new clinical trial to show a COMPLETE response, and am the farthest out of the other women who had a good response. They must not be on Herceptin, but I don't know their treatment details.
My med onc has referred to my brain mets as "isolated" and thinks this is all I will have if I stay NED from my ears down. I like that approach!

WE are writing new chapters in the course of cancer care and survival - and it is up to us to show what can be done with the new drugs in the right instances as more becomes known about our pathology and who responds to what drugs. Most of the docs are not up to speed on who we are and what we can accomplish in our battle with BC.

Don't know if this answers, but I think I understood your question ...

02-15-2006, 08:29 PM	#3
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Makes a LOT of sense Your question is a good one and is the reason so many of us are here on this particular board to share our experiences. I for one would have been gone probably 3 years ago after first showing of rampaging mets. Fortunately I was the first one through a new clinical trial to show a COMPLETE response, and am the farthest out of the other women who had a good response. They must not be on Herceptin, but I don't know their treatment details. My med onc has referred to my brain mets as "isolated" and thinks this is all I will have if I stay NED from my ears down. I like that approach! WE are writing new chapters in the course of cancer care and survival - and it is up to us to show what can be done with the new drugs in the right instances as more becomes known about our pathology and who responds to what drugs. Most of the docs are not up to speed on who we are and what we can accomplish in our battle with BC. Don't know if this answers, but I think I understood your question ...