HER2 Support Group Forums - View Single Post - brain mets, please help with realistic pep talk. wha

Lolly · 02-15-2006, 04:25 PM

You sound very down and no wonder, brain mets diagnosis knocks the stuffing out of anyone, but there are as Steph says some trailblazing women here who will be answering your post soon with much encouragement.

It seems that most have opted for WBR, followed by Sterotactic to clean up problem areas, so I don't understand why your onc thinks that would entail "too much" radiation as it seems to be standard protocol.
Patty Z who posts here had multiple lesions, I think 17, and has refused WBR choosing instead to spot treat the largest ones with Sterotactic, and is now being treated with a combination of Xeloda and Temodor(?) by her onc as these have shown evidence of crossing the BBB. I hope she answers with her experiences.
As Steph says, don't give up hope, but you may have to be firm about wanting to pursue options...
We're here for you.

<3 Lolly

02-15-2006, 04:25 PM	#5
Lolly Senior Member Join Date: Aug 2001 Location: Oregon Posts: 1,756	You sound very down and no wonder, brain mets diagnosis knocks the stuffing out of anyone, but there are as Steph says some trailblazing women here who will be answering your post soon with much encouragement. It seems that most have opted for WBR, followed by Sterotactic to clean up problem areas, so I don't understand why your onc thinks that would entail "too much" radiation as it seems to be standard protocol. Patty Z who posts here had multiple lesions, I think 17, and has refused WBR choosing instead to spot treat the largest ones with Sterotactic, and is now being treated with a combination of Xeloda and Temodor(?) by her onc as these have shown evidence of crossing the BBB. I hope she answers with her experiences. As Steph says, don't give up hope, but you may have to be firm about wanting to pursue options... We're here for you. <3 Lolly Last edited by Lolly; 02-15-2006 at 06:20 PM..