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I was going to announce this later, but since the subject came up, will inform you now.
There have been several papers published recently that have frightening implications for women who are HER2 positive:
One is that of women who take Herceptin, 10% of them will develop brain tumors as their initial mathesteses. This is not due to Herceptin but because Herceptin does not cross the blood brain barrier.
The second one states that in general women who are HER2 positive have twice the occurances on brain mets than women who are not. This is just the nature of the beast.
The HER2 Support Group will be attending the ASCO Meeting at Atlanta in June. We will launch a campaign to emphasize better diagnosis and more effective treatment of brain mets for women who are HER2 Positive. Dr. Eric Winer recently has accepted our invitation to join our board of advisors and we will be consulting with him to determine the best approach. We also have Dr. Keith Black and Dr. Michael Badruddoja both experts in neroulogy on our advisory board and will also be requesting their input.
Warmest Regards
Joe
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