Lani

It is available for the treatment of gigantism and neuroendocrine tumors. I think it was Gina who said she keeps an endocrinologist in consultation at all times since this disease effects and is effected by numerous systems within the body, including the endocrine system.

I am not an oncologist, but if one's oncologist has run out of ideas, run this by him/her and/or ask him/her to run this by an endocrinologist or even better a gastroenterologist treating neuroendocrine tumors.

I think one thing which prompted me to post this out of the blue, was the post which reprinted the lamentation of the doctor regarding the failure of our system to try things on those "on their last legs"

It seems those on this website are into "creative cooking" with their supplements and might be willing to accept some "creative cooking" with "off-label drugs" when they are on their last legs.


If one's oncologist has run out of ideas, perhaps they might be open to "creativity" IF AN EXISTING DRUG FOR A DIFFERENT DISEASE WORKING THROUGH A SIMILAR MECHANISM MIGHT MAKE SENSE IN THEIR SETTING.

Any idea may be better than none.

I will try to look up the side effects of octeotride and post if I can.

Lani