Lani

I think I was the one who warned people with private insurance to "read the fine print" for fear of losing your private insurance just because you become "Medicare eligible" even if you DO NOT UTILIZE Medicare insurance. Fortunately I did not have personal experience in this matter.

Gina, your post brought this point home in a way no one else could have

I am so sorry that you had to find this out yourself in such a horrific way


I hope people on this website get this word out to others so that people can
take all these nuances and implications into consideration before making irreversible decisions regarding insurance and disability.

Insurance and the government have this way of writing their policies to get those in true need stuck between a rock and a hard place so that they can weasel out.

It seems insurance is the one venue that even Ralph Nader would never dare to venture into.

About a month ago a lawyer posted on this her2group board and asked all of us to join her in finding a way to utilize her/our talents to help the breast cancer community. There are many already who lobby for research, making drugs available earlier, etc. but the area of insurance and disability is an area which truly affects each and every breast cancer patient no matter their level of support from family and friends. Perhaps some on this board could put their efforts into organizing help with insurance problems, lobbying states to change their regulation of these insurance practices(unfortunately insurance is the ONLY type of interstate commerce which is NOT regulated by the federal government!), and generally trying to make sure that each and every breast cancer patient does not have to fear utilizing one type of help for losing another!

Gina, I wish you only the best!