To Lolly and anyone else with a plan
Hi Lolly, I read your response on one of the posts saying you were going to consider Xeloda, my experience is I haven't been very impressed with it in my situation. The original use was for skin mets to the scar area, this went almost straight away but then I got it in the neck area and it didn't work, I do believe that when I take it before my biopsies it prevented the spread and enlargement, my very first biopsy in 98 lump tripled in a week, but apart from using it before biopsies it hasn't been a magic bullet for anything else. I don't know if it is because I am only on 1000mg per day 14 days on 14 off and it isn't enough, but when I had too much I seem to suffer the consequences with the side effects, I am on on the minimum for this combo but I believe the higher it goes I may get sick, and that I don't want to face, I have been feeling off on the last round but not sure if I got a stomach bug or the pain relief Endones. Have you considered anything else besides Xeloda, I am considering the Navelbine again and will fax my mammo and scan results to my onc Boris tonight, I will be seeing him on Tuesday as well as having triple and also it is the day I am supposed to recommence oral for 2 weeks, I really don't even know what I am treating, at least with the lymphs and skin you can see and feel but this one is under the radar.
Love & Hugs Lyn
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