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Joan · 01-22-2006, 08:29 AM

Thanks, Rohnda, Susan, Becky, Meridith, Lolly & Al,

I was taking Co Q-10 but now realize that I was talking too low a dose.

Also, apparently C0 -Q-10 brands are formulated differently, as I found out when I went to buy a new supply. The salesperson told me that the one I had been using simply flushes out of your body untless you take it with an oil, such as flax oil.
She showed me a brand that was already formulated with flax oil and another
brand that was not water soluable. I had't realized that the C0 Q-10 I was taking was probably being flushed out of my body without doing much good and also that I was taking way too low a dose.

While I was taking chemo my MUGA scores were: 61% in April/05, 63% July/05
60 % October. When I started to take radiation in Novermber that's when I first noticed a short catch in my breath every once in awhile, but the sudden drop to a MUGA score of 31% last week completely took me my surprise. The nurse told me that they have had a couple of other patients on Herceptin whose MUGA scores suddently plummetted.

I am going to see a cardiologist and I will be working and fighting to get my
heart/breathing back to normal.

I will follow up with the personal training and now that I have the right brand of C 0- Q-10, I will be upping my dose. Your messages lifted my spirits as
combined with not feeling well (31% capacity sort of knocks the stuffing out of your breathing capacity and makes you feel like a wet rag) I was distressed at being threatened with never having access to Herceptin in the future......I
now feel much more hopeful.

Thanks to each of you for your replies!

Joan

01-22-2006, 08:29 AM	#10
Joan Member Join Date: Sep 2005 Location: Canada Posts: 24	Thanks! Thanks, Rohnda, Susan, Becky, Meridith, Lolly & Al, I was taking Co Q-10 but now realize that I was talking too low a dose. Also, apparently C0 -Q-10 brands are formulated differently, as I found out when I went to buy a new supply. The salesperson told me that the one I had been using simply flushes out of your body untless you take it with an oil, such as flax oil. She showed me a brand that was already formulated with flax oil and another brand that was not water soluable. I had't realized that the C0 Q-10 I was taking was probably being flushed out of my body without doing much good and also that I was taking way too low a dose. While I was taking chemo my MUGA scores were: 61% in April/05, 63% July/05 60 % October. When I started to take radiation in Novermber that's when I first noticed a short catch in my breath every once in awhile, but the sudden drop to a MUGA score of 31% last week completely took me my surprise. The nurse told me that they have had a couple of other patients on Herceptin whose MUGA scores suddently plummetted. I am going to see a cardiologist and I will be working and fighting to get my heart/breathing back to normal. I will follow up with the personal training and now that I have the right brand of C 0- Q-10, I will be upping my dose. Your messages lifted my spirits as combined with not feeling well (31% capacity sort of knocks the stuffing out of your breathing capacity and makes you feel like a wet rag) I was distressed at being threatened with never having access to Herceptin in the future......I now feel much more hopeful. Thanks to each of you for your replies! Joan