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Barbara H. · 01-20-2006, 07:00 PM

Hi Steph,
Sorry to hear of your ordeal. I just returned from the Brain Tumor Clinic. I had my post-op MRI yesterday. It turns out that I still have inflamation (post operative changes) that they had hoped would have been resolved by now. In some people it continues longer, but I need to have another MRI in two months to check how I am healing. I had a long talk with the radiologist about necrosis. There is still a lot about it that the experts don't understand. What you read on the internet is scary, and from what I understood is inaccurate and/or doesn't apply in my case. Usually necrosis grows to a certain point and then the body takes care of it. The problem for us is that they want to make sure that there are no tumor cells involved, and the only way to really know for sure is to go in and get it. Dr. Peter Black took mine out with MRI support. I was actually in a MRI machine during the entire surgery. I had surgery late Friday and was home by noon on Sunday. I only missed 6 days of school. The following Monday a week later I returned to my third grade classroom. I didn't receive Decradon until the surgery and was weened off of it in a week. I actually found this surgery to be much easier than the sterotactic surgery I received in June 04. I really had balance problems then, and had no balance problems this time. Maybe it was because I only needed to be on the decradon for a week. I do not want to post my tel. phone number over the internet, but if there is a way Joe can get your number safely to me, and you want me to call you, I would be happy to speak to you about it. I am also willing to send my number if there is a secure way to do it.
Another note! My oncologist, Dr. Parker said that he met two women from the HER2 support booth in San Antonio. He couldn't remember whom. I imagine it was you or Christine, or perhaps Linda. Wish I could have been there with you.
Best wishes, and I hope you will find your procedure as easy as I did. ( although none of this is easy)
Barbara H.

01-20-2006, 07:00 PM	#11
Barbara H. Senior Member Join Date: Sep 2005 Location: Newton, MA Posts: 951	Brain issues Hi Steph, Sorry to hear of your ordeal. I just returned from the Brain Tumor Clinic. I had my post-op MRI yesterday. It turns out that I still have inflamation (post operative changes) that they had hoped would have been resolved by now. In some people it continues longer, but I need to have another MRI in two months to check how I am healing. I had a long talk with the radiologist about necrosis. There is still a lot about it that the experts don't understand. What you read on the internet is scary, and from what I understood is inaccurate and/or doesn't apply in my case. Usually necrosis grows to a certain point and then the body takes care of it. The problem for us is that they want to make sure that there are no tumor cells involved, and the only way to really know for sure is to go in and get it. Dr. Peter Black took mine out with MRI support. I was actually in a MRI machine during the entire surgery. I had surgery late Friday and was home by noon on Sunday. I only missed 6 days of school. The following Monday a week later I returned to my third grade classroom. I didn't receive Decradon until the surgery and was weened off of it in a week. I actually found this surgery to be much easier than the sterotactic surgery I received in June 04. I really had balance problems then, and had no balance problems this time. Maybe it was because I only needed to be on the decradon for a week. I do not want to post my tel. phone number over the internet, but if there is a way Joe can get your number safely to me, and you want me to call you, I would be happy to speak to you about it. I am also willing to send my number if there is a secure way to do it. Another note! My oncologist, Dr. Parker said that he met two women from the HER2 support booth in San Antonio. He couldn't remember whom. I imagine it was you or Christine, or perhaps Linda. Wish I could have been there with you. Best wishes, and I hope you will find your procedure as easy as I did. ( although none of this is easy) Barbara H.