HER2 Support Group Forums - View Single Post - More info on HER2 positive friend of mine!

TAG · 01-13-2006, 11:31 AM

John,

I wanted to personally thank you for your post regarding my friend. Thanks for taking the time to write all you did.

I printed it out and will give her a copy of it. Knowledge is power as fas as I'm concerned.

My friend did go to the center yesterday but left frustrated again. I'm not 100% on everything that was said because I wasn't there but I guess the bottom line is the Dr.s wanted to have a board meeting to figure out what the next step should be. The confusion is the 3 labs coming back with different opinions on the stains. 2 labs came back ER negative but the one pathologist from where she went yesterday is the one that said she is ER positive so the Dr.s want to get with the pathologist and figure it all out. My friend told me they do not give Herceptin unless it's with Chemo but I thought you can give Herceptin without Chemo. That confused us both so I thought I would run this past you. The center will call her on Monday with how their meeting went. They also mentioned she has a 6% chance of the cancer coming back in the next 10 years but if she's does Chemo/Herceptin her chance would be 3%? If thats true, I wouldn't do the Chemo/Herceptin. They also told her she is cancer free right now but it can always come back. This was pretty much all of the info I got from their meeting.

Any thoughts or ideas?

Thanks again,
Toni

01-13-2006, 11:31 AM	#4
TAG Member Join Date: Jan 2006 Location: Michigan Posts: 10	My friend still doesn't have any answers! John, I wanted to personally thank you for your post regarding my friend. Thanks for taking the time to write all you did. I printed it out and will give her a copy of it. Knowledge is power as fas as I'm concerned. My friend did go to the center yesterday but left frustrated again. I'm not 100% on everything that was said because I wasn't there but I guess the bottom line is the Dr.s wanted to have a board meeting to figure out what the next step should be. The confusion is the 3 labs coming back with different opinions on the stains. 2 labs came back ER negative but the one pathologist from where she went yesterday is the one that said she is ER positive so the Dr.s want to get with the pathologist and figure it all out. My friend told me they do not give Herceptin unless it's with Chemo but I thought you can give Herceptin without Chemo. That confused us both so I thought I would run this past you. The center will call her on Monday with how their meeting went. They also mentioned she has a 6% chance of the cancer coming back in the next 10 years but if she's does Chemo/Herceptin her chance would be 3%? If thats true, I wouldn't do the Chemo/Herceptin. They also told her she is cancer free right now but it can always come back. This was pretty much all of the info I got from their meeting. Any thoughts or ideas? Thanks again, Toni