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Weakness and shakiness is caused by Decadron. Have you asked if you could lower the dose or get off of it? You may be able to, if you don't have swelling or headaches. Maybe you need another MRI to determine that, just for the treatment. I would be demanding. Tell your doctor how bad it is making you feel. Your quality of life is important. One thing about being off the Decradon is that you are more likely to feel it if the mets start to grow. I can't give you medical advice, but I would certainly discuss this option with my oncologist. You also want to keep yourself as strong as possible. I would also resist a second round of WBR for as long as possilbe. I would persue the other options that are out there now, and hope that others become available.
Good luck and let us know how you are doing. I'm impressed that you are walking an hour each day.
Best wishes,
Barbara H.
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