Cynthia, I admire your background and your willingness to try to change the stagnant status quo system of lack of access to more non-FDA approved breast cancer medical therapies. The only system in place at this point in time for such inaccessible experimental drugs is via of pharmaceutical company compassionate use programs. I guess I would recommend using systems that would be in place already such as compassionate use programs and work at making them more efficient, ig. speeding up the ability to obtain compasssionate use meds.I also wonder if "fast track medical approval" by the FDA could be sped up even faster to make some of these medications available to those who are literally dying to have them.
If you are looking for support, this group is a good place to start. However, for such a committed organization that you need to form, I imagine face to face interactions would be much more effective. Good luck with your endevours.
PS. I hope, especially as an attorney, you litigated for your misdiagnosis of a breast cancer. Sorry to hear about that!
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Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
Last edited by RobinP; 01-11-2006 at 07:32 AM..
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