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Old 01-10-2006, 11:49 PM   #14
tammymarie1971
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Join Date: Sep 2005
Location: British Columbia, Canada
Posts: 198
Oh my where to start.....I'm not even sure what to say or how to say it...Sure there was alot of media hype about herceptin..and good thing even though some of it may have been "hyped" up the fact remains that it has helped a great deal of women!!!! without the horrendous side effects of lots of other treatments. Sure it doesn't work for everyone by itself..but from what I understand even if you progress while on it and it seems not to have "worked" it has done something to slow all the her2 receptors at least somewhat. Maybe I'm wrong but hasn't it been said that the longer you're on it by itself or in combination that it is keeping the her2 from exploding out of control, thus changing a very fast growing cancer into one that is more slower growing? It is not a cure but it has certainly paved the way for the cure..as now new biologicals are being tested and proven very frequently..Also lots of women when having chemo added to herceptin acheive stable disease which can then be maintained for long periods of time. I think Ralph Moss has some very good points on some things, but I do believe he is one sided..I have been to his website many times in the past, but I'm not sure I trust him to be fully non-biased in regards to anything in the cancer industry. I realize that it can seem somewhat daunting to think of being on treatment for the rest of one's life, but I do believe that we just have to find the right combo and not necessarily(sp?) the same one for all, but a great deal of us!! I don't know if all of this has made sense as I have so many thoughts swirling at the same time, but if I had a friend or sister or anyone that I cared anything about and they were her2 pos I would strongly urge them to at the very least to try herceptin.!!!!!
Tammy
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Dx'd Dec'01 while 6mos preg. with #4. child (30yrsold)Mastectomy/AC chemo/radiation/ Recur:Mar'04 liver mets: 3 taxol/herceptin /liver resection/3 taxol/herceptin. Cured?
Recur: May'05 spine & Hip. New onc
treatment in Mexico Feb'06-Mar-06
back to Mexico June/July '06
Currently on herceptin/Zometa/Femara-recently added navelbine
Switched to arimidex Nov'06
ovaries removed June '07
ca15-3 in May'06 was 102
ca15-3 summer of '07 holding steady at 23!
ca15-3 slowly rising Dec & Jan 36, 38, 41 and Feb was 36
Feb '08 Liver, lung & Brain scan NED... bones are stable with even a couple spots gone. as compared with '06 scans
May '08 ca 15-3 is 55. Treatment is zometa, vinorelbine, herceptin and aromasin.
No signifcant changes.
Feb'09 Started Xeloda with herceptin..no more hormonals
Feb'09-June'09 tumor markers coming down again from 155 to 84
May'09 blood clots in lungs vena cava filter put in..Heparin shots daily for now.
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