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Old 01-08-2006, 08:35 PM   #3
TriciaK
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Join Date: Sep 2005
Location: St. George, UT
Posts: 582
Exclamation Great information!

Thanks, Joe! I am astounded by the number of trials listed here! I agree with StephN: this list needs to be "stickied" and added to as new ones come up. I also understand all the frustration you are expressing. For instance, I seriously doubt if I will ever be able to take part in any trial at my age, yet I wish someone would be willing to study women like me who have survived 20 years with no chemo or radiation until these last mets. I have actually had only surgery for the initial BC (March, 1985), only tamoxifen for the vertebra mets 5 years later (June 1990), and for the last mets 15 years later ( June 2004) only 6 months of navelbine, plus continuing herceptin and femara. NED for the last couple of months, off herceptin last 2 months because of low MUGA and echo, now on only femara. It will be interesting (at least!) to see how long I can stay NED on just femara and whether my heart will heal enough to be able to have herceptin again if I do need it. Anyway, I hope and pray that the trials will be available to all the courageous women on this website who desperately need more miracles. This website and information like this list plus all the other info, experience, love and williness to share is phenominal. I can't tell you how much I admire, appreciate and respect you! Hugs, Tricia

Last edited by TriciaK; 01-08-2006 at 08:39 PM..
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