[kristen]

Chrs,
No-one I know of....
This is just my thoughts on the testing of genes. Are you referring to the BRCA test?
There is what? 16% that they don't know what the gene is made up of they call it being suspect? They can't tell you if it's BRCA 1 or 2, but it's the piece of the pie they can't name. I can't remember the exact percentage or if they call it suspect but it's pretty close. ( chemo brain, menopuause brain here,) but just about everyone I know who has been tested for the BRCA gene is neg that is HER 2+++.

I am no scientist but from what I have read over the years, her2 is an oncogene (that is a different gene the the DNA they test for with BRCA) that everyone has and for some reason, ours goes nuts and we get cancer. My genetisict told me that her 2 is NOT a factor in the BRCA test. I think someday and here soon, that they will find a gene that will show up in that test for us that will relate to her2. That being in the remaining 16%???
The other test they were talking about reminds me of the Onco DX test. Which will tell you about treatment but not passing on the gene(s) to your children or grandchildren.
I think Julieren has a very specific gene they can look for something that has been in there family and has been found by very sad circumstance. I look at it like having Ataxia, it has it's own gene they can test for and until we know what gene that is for her2 that makes it go crazy, the BRCA one is the only one I have heard of....
I could very well be wrong about gene testing, I had the BRCA test done and it was neg also. But my limited mind and researching has left me with that thought.
I am open to hearing anyones else's thougths on this.....